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Higher Powers: Cooties in the Lab: Going With the Flow: Research Tower: Meagan's Miracle: Lessons In Philanthropy: Prayers Answered: The Giver: Cancer From Every Angle: The Strange Case of Tom Little The Comeback Kid: Mighty Mice Predicting Disease: This Is My Brain on 3-Tesla MRI Autism: A Personal Story OMRF People Hitting the Right Note: Bob Floyd The Gospel According to Luke (Szweda)
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By Shari Hawkins It was windy that Thursday in November—the kind of swirling wind Oklahoma is famous for. Shrubs whipped back and forth. Leaves somersaulted across the portico of the Oklahoma Medical Research Foundation. Huguette White moved nimbly across the stone porch, her long hair flying behind her. No matter that she walked on a single leg and a pair of crutches. Just inside the door, she clasped her hands over her heart and closed her eyes. “Oh, I feel like I’m home.” Growing pains. That’s what the doctor called the ache above Huguette’s knee. The throbbing persisted, sapping the 15-year-old’s energy and limiting her movement, but still her doctor seemed unconcerned. After eight months, when Huguette no longer could lift her leg, her parents consulted a second physician. He diagnosed her “growing pains” as cancer: Ewing’s sarcoma, a rare and deadly cancer of the bone that typically strikes adolescents and can spread quickly. Your chances of survival, he said, are not good. Huguette and her family were not prepared to give up so easily. She and her mother flew from their native Lebanon to OMRF’s research hospital. The year was 1954, and even though OMRF was internationally recognized for its work on childhood cancers, she nevertheless had reason to fear the worst: 53 years ago, few victims of Ewing’s sarcoma, in Lebanon or elsewhere, survived. The language barrier—Huguette spoke no English, only Arabic and French—only added to her apprehension about this unfamiliar place half a world from home. Hugh Payne, OMRF’s general manager, made it his mission to comfort OMRF’s new patient. He knew that Huguette’s treatment would be harsh; the cancer had grown unchecked for the better part of a year, and surgeons deemed amputation the only way to save her life. Payne delivered the news himself. When he told Huguette, translating through her mother, both women broke down sobbing. The teen had never heard of amputation, but Payne assured her that it would save her life. He also explained that her leg would be used for research, to help save other young people just like her. She dried her eyes. “If it’s going to help people, okay.” The night before the operation, Payne stayed up with Huguette until the wee hours, reading to her from the Bible. The next morning, he presented her with her first corsage, a gardenia.
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